Quick summary about our visit

I will write more tomorrow but I know some of you are waiting for an update from our appointment today.  We met Dr. Lakshmi today and got a final diagnosis.  It is nothing new but there is something to say about finally knowing.  He is diagnosed with Diamond Blackfan Anemia and will begin steroid therapy after he gets his 6 month immunizations.  The side effects of the steroids are awful and the unknown of which ones will affect him and their severity just brings me to tears.  I am trying to process it all and enjoy the time we have left before the steroid therapy begins. 

 I am praying about our relationship with Dr. Lakshmi.  I think she is one of the very best with this condition but her empathy was not really there.  I am such a relational person and it is hard to work so closely with someone who is more of a scientific person.  Our social worker worded it perfectly when she said that she acts more like a surgeon than a pediatrician dealing with kids.  I want the very best care for James Thomas but it is going to be hard for me to go to the clinic weekly, alone, and not have a doctor that I can express myself too.  This is going to be a life long battle and I truly wanted to become friends with our doctor.   I am trusting God to lead us in the right direction about this relationship and we will see what happens from there.  

Like I said I am pretty emotionally drained today.  I will update more details later and explain more of what DBA (Diamond Blackfan Anemia) means for James Thomas and our family.  We were given lots of information to read and we have lots to learn.  Thanks for the well wishes today and your prayers.  We could never get through this without you.  Lots of love! 

PS  We took these pictures when we returned from clinic.  We love the cool weather because it gives us another chance to wear our cute pumpkin hat!  I love this little boy so much.  He is such a joy in my life.