Saturday, October 17, 2009

Day 3 at Texas Children's

Good Morning!  We tried to upload this video last night and the internet was so slow so we will try to do it again this morning.  Things are going well at the hospital.  The nurses all love sweet James Thomas and our tech said he was the most popular baby on the floor.  He is happy which is great and they think he is starting to pink up.  We will post new pictures later for you to decide yourself.

We do have a prayer request.  They are having an AWFUL time drawing blood.  They have tried four different times with four different nurses and they keep blowing his veins.  My heart breaks with each scream and wale.  They are calling down a specialty unit to come try again later but they want to take it from his head so I am little sick about that.  PLEASE pray that they get some blood quickly.  We are still on track for our bone marrow biopsy Monday.  They are going to test his levels today to see how many more blood transfusions he needs today.   We still have no prognosis but FINALLY today a resident told us they really think it is a condition called Diamond Blackfan Anemia.  It said that about 5-7 babies out of a million are born with this condition!  I don't see how it could be this form of anemia but they don't have any other leads right now.  We will pray for God's grace as James Thomas' perfect path unfolds.  I really don't know what to ask you to specifically pray for when it comes to diagnosis so we are shooting for miraculous reproduction of his red blood cells.  I will post more later but we won't know anything until next week.

James Thomas is amazing and so happy even in the hospital.  We love you and thank you for your support.

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