We are going home!

The nurse and resident just came in and told us we are going home today!  They said they might "tank him up" with one last blood transfusion but we should be out of here sometime today.  We are going on a tour of the clinic before we leave and they are setting our appointment time for  Friday.  This Diamond Blackfan Anemia is so rare they are still trying to figure out who our primary hematologist will be but there is a doctor at the clinic who has worked with it before.  We really pray that we get the perfect fit for James Thomas.  We will be seeing this doctor so much and working so closely with them I really really get nervous about who they choose.  Please pray for our new doctor.  

They said we will be at clinic all day Friday but at least tonight we will all be sleeping in our beds at home!  James' dad Papa has been with us since Sunday.  He is going back to Nacogdoches this afternoon.  I know James has enjoyed spending time with him.  We are glad he has been here. Nancy was here on Friday and went home on Sunday.  She is coming back today with Jim to help us out at home.  We are so glad she will be with us the next few days.  She is so good with James Thomas.  Another thank you to my parents who were with us and went back last night.  We appreciate all of our parents love and support.  James and I are truly blessed and we have a lot to live up to.

I was in the Family Room this morning getting a drink and a danish when I started talking with this dad.  He told me they were admitted on Monday and last night they were told their ten year old daughter has cancer.  Today they will do her biopsies to find out the exact type.  He told me he had to tell her the news today.  Can you imagine telling your ten year old they have cancer?  Our prognosis has come at such a young age that James Thomas will never know any different.  My heart aches for this family.  Thank you so much for the prayers for James Thomas but PLEASE pray for all the kids on this 9th floor.  It is a devastating floor and each day a new family is brought in.  You can see the anguish and pain in their eyes.  This verse just keeps popping in my head, "For I know the plans that I have for you declares the Lord, plans for peace and not evil, to give you a future and a hope."  Jeremiah 29:11  As we leave today I pray that we are never readmitted to this 9th floor at Texas Children's but I will pray every day for each child and family that steps foot here.  They will be brought to their knees and I just hope they will look up!

Love to all of you.  We are forever changed and your support and encouragement has made this horrible experience a joyful one.