Back in room 18

We are back in our room and James Thomas is doing great.  The procedure took about an hour and they said it went super smoothly.  We sat with him in the recovery area and when he woke up I was able to nurse him.  He was one hungry fellow.  The great new about the pic line is that they have taken out that big I.V. that looked like a cast in all the pictures.  His nurse is letting him stay off IV fluids for awhile so he is free!  We have danced around the room and turned lots of circles.  The freedom is fabulous.  

We are waiting to get test results back and they want to take more blood out of the pic line later.  James went to eat with his dad and we are trying to get James Thomas to take a little nap.  It is pretty calm now so I may try to rest too.  Thank you for the prayers.  We had an amazing peace when they took him, no tears - no sorrow!  James is a rock and I feel honored to be on this journey with him as his wife.  I love him so much.  

A little exciting news.  James' second cousin was a fabulous pediatric GI doctor in Washington DC. and has a colleague who works at Texas Children's.  This doctor came down while James Thomas was in surgery and said he is going to do anything to help us out.  He has a friend who is in hematology so he is going to get more information from him.  This is great news but the amazing part hasn't even come yet.  So, I told him about Luke.  He said his boss works on EB patients frequently and is the best in Houston.  He told me the Jones' family would not be able to get in with him and if they did it would take months.  He said that he would take Luke as his patient and then use this top doctor to do any procedures Luke may need in the future.  Isn't this wonderful!!!  He gave us his card and hopefully Melissa and Greg can get Luke in to see him.  God is good.  These things that keep happening can't be coincidence but God's hand protecting our two families.  

We will try to post some pictures later of James Thomas.  I have put him in PJs and he is being rocked by his Mimi.  Again, thank you for the love and support.  Each of you have eased our pain and cried out to God for our son.  Priceless!