Quick update before bed

We are home!  We got home around 6:15 this evening, Nancy and Jim are here, and we ordered chinese.  It is nice to be home.  

A little bit about our day.....  We were assigned a social worker who will be with us through out this entire journey.  She talked about going to the schools with us when James Thomas starts Kindergarten, fighting insurance companies with us, being a go to person if we have concerns with our doctors or nurses, and just a person to listen.  I was sitting there listening to her talk and thinking to myself, "This can't be real.  Are we really going to need her through out this journey?  How bad is this going to be for James Thomas and our family?"  I just have to say it, this is scary, very scary!  I don't think I have been realistic with myself and reality is coming whether I like it or not.  

We were also assigned a doctor.  Like in my earlier post I really hope she is a good fit.  I pray she learns everything she can about his potential condition, and works hard to help us fight this.  We will meet her on Tuesday.  

We also got a tour of the clinic.  It was sad.  That is all there is to say about it.  We saw lots of kids receiving chemo and blood transfusions.  We will be spending  a lot of time here.  Our first appointment is Friday.  They said we will be going twice a week for awhile until we learn more about James Thomas' condition.  

I am not trying to be a downer, I promise.  I think being home I want everything to be better and it's not.  Nancy and I bathed James Thomas tonight and I had to wrap his entire arm in press and seal wrap.  The pic line is a visible reminder that my baby boy is sick.  It is hard to see your precious baby and know he is sick.

I am off to bed.  Nancy has offered to feed him if he wakes up during the night so hopefully I can clear my head.  

We are so thankful for all your love and support.  We could not have survived the past 7 days with out each of you.  Just knowing people were following our blog and praying for James Thomas was comforting.  Texas Children's Hospital is an amazing place.  I will pray you never walk those halls with your child as a patient but if you do God has lots of angels at work there.  They are doing wonderful work and saving lives.

Love to you all,

Lindsay

PS Tomorrow we are going to do something fun with James Thomas and I will be able to post a happy entry then, maybe some pictures at the pumpkin patch!!!!