We have been super busy around here. On Monday I took James Thomas to the zoo for the first time. It was actually my first time to the Houston zoo as well. We had a wonderful time with the Jones' and Chambers kids. I bought the zoo pass and can't wait to go back this Wednesday. Last Wednesday James Thomas got his 12th blood transfusion. He is really on the go now so this was my first time to chase him around the room with his pole. He has no idea that he is connected to the IV in his chest and my biggest fear is that he will take off and the needle will be pulled from his port. That would be a nightmare so I must keep my eye on the little guy every second. Luckily he took a good hour nap in his stroller which gave me a little break. Transfusion days are so long. I think Texas Children's does it a little differently than other hospitals because we go in for labs, wait for the blood, and get the transfusion all in one day. This last time we got there at 9:30 and left around 5:00 which is one LONG, LONG, day. He is feeling great now and has LOTS of color. I love it!
James and I are having a lot of work done on our house so Thursday morning the contractor and painters showed up bright and early. We are living out of two bedrooms and have spent a few nights at the Jones' house as well. It looks awesome over here (amazing what fresh paint can do) but I am ready for them to finish so I can put my house back together.
We had a great weekend cheering on the Baylor Bears in the Sweet 16 and Elite 8 with friends. The Heersinks drove into town to watch the games and it was nice to get to spend some quality time with them. We had so much fun going to the games on Friday and Sunday. James and I love Baylor so much! We have such awesome memories from our college days and formed the best relationships while there. I think choosing Baylor for college may be the best decision I ever made. That one decision paved the way to the wonderful husband, baby, and friends I now have. It would have been fabulous if Baylor could of made it to the Final 4 but we are still proud. Tonight the girls got into the Final 4 in San Antonio so James and I may have to find a way to get down there for those games. GO LADY BEARS GO!
This week is very uneventful medically which is a blessing! We are waiting for some genetic test results from the doctors in New York. They drew all our blood back in November so we really hope we hear back soon. This would be our prayer request now. We are at a stand still until we here back from them. We always pray that James Thomas will start making red blood cells on his own and complete healing!
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9 years ago
Ditto on the zoo and Baylor b-ball! Maybe we can meet you at the zoo on of these days too. Tomorrow I have an ob checkup so that won't work...but anytime you go send me a text.
ReplyDeletealways, always, ALWAYS praying for HEALING for your sweet james thomas!!! love you guys!!!
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