We celebrated James Thomas' birthday 3 weeks early this year at Noah's Ark Pool. I went to book his party in March and crazy enough the entire month of June was already completely booked. That is the beauty of a 2 year old, they have no idea when their birthday really is so May 14th seemed like a perfect day! JT had a blast splashing around and playing with great friends. The day was perfect and so much fun! I can't believe my baby is almost 2 years old! Where has the time gone?
Medically things are kind of iffy right now. James Thomas has been on steroids since late July and they have been working beautifully. Three weeks ago we had our first dip in his hgb. He was still in the normal range so we decided to leave everything alone and check in 2 weeks. Last Friday we went in and his hgb had dropped more, his retic was 0.5% (this is the very low end of the normal range), and for the first time his platelets were below normal. I just had an appointment for labs but Dr. B came out and talked with me in the transfusion area. We decided to raise his steroid dose and have an office visit this Friday. We are really nervous about all of this right now. We really hope his retic will go up by Friday. Even with all this going on James Thomas is still doing great. He hasn't missed a beat and is a very active little boy! We really couldn't ask for more from him. He is a true blessing!!!!
Thank you for funding research in the hopes that someday James Thomas will be cured! The price includes all taxes and shipping.
Donations to Diamond Blackfan Anemia
If you do not want to order a cookbook but would still like to donate to this wonderful organization, you can donate here! Every dollar is used to fund research to someday find a cure or better treatments for DBA!
James and I were married on December 4, 2004 in the hill country. We have lived in Houston ever since. I just finished up my teaching career at the best school ever, B.Bush Elementary. James graduated from U of H law school and started his new job in November. Our family has recently grown as we welcomed James Thomas into this world. He is an absolute joy and the best thing we have ever done. I am so in love and thank God for our gift every day. In October he was diagnosed with Diamond Blackfan Anemia. DBA is a rare blood disorder where the bone marrow fails to produce red blood cells. He is currently transfusion dependent and we will try a steroid trial sometime in the Fall. We have so many wonderful friends and family who care so much and are blessed to be able to share this blog with all of them.
awesome birthday party!!! love it! praying for this appointment & you guys, my sweet friend! love you & love that sweet boy!
ReplyDeleteHappy Birthday Sweet James Thomas! ;-) I'll be praying for Friday
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