Caring Bridge Page

I decided to set up a Caring Bridge Page for James Thomas. Lots of other DBA families have them and they are awesome when it comes to following all these kids through their medical journey. For the past 8 months we have really been in what I call the Honeymoon phase of DBA. We go in for our bimonthly transfusions, meet with our Hematologist, and monitor James Thomas closely for fever. I have gotten very accustomed to clinic, the ER, and all the staff at Texas Children's. Our hematologist feels that James Thomas is needing transfusions too frequently and so she is moving up our steroid trial. We originally wanted to wait until he was 18 months old but that is not going to be the case now. We wanted to wait until we got back from most of our travels. We leave on Friday for our dear friend Richard Duge's wedding in Austin, from Austin we fly to Maine for Camp Sunshine, then we go to Louisville for Grandpa's 90th birthday (and we are going to get to see the Hutcheson family WOO HOO), and then back to Austin. So our big date is July 23rd! I am super nervous about this entire process. We want James Thomas to respond with minimal side effects. It is also time to start our IVF stuff too. We had the most amazing consult with Dr. Hughes and he said everything is ready in Detroit. With all this said it was time for Caring Bridge! I am still going to update this blog. It will be more of what is going on with our day to day life. It will be my place to post fun pics and record all the great things James Thomas is doing each week!

Thank you for following us through out this journey. Your prayers have been heard and we are doing so well. If you think about us in the next week or two say a little prayer for all our travel. I do not LOVE to fly and we will be doing lots of it with a 13 month old!




www.caringbridge.org/visit/jamesthomasgarrett